Site © 2017-2019 by CTNNB1 Syndrome Awareness Worldwide (CSAW).  The information contained in this site should not be construed as a substitute for personal medical advice. Please consult with a qualified clinician in all matters relating to genetic diagnosis, management and health. 

 

GET INVOLVED

Click on the title above to access the member forum. Please remember that all posts to this forum are publicly available, so be sensitive to privacy issues!  There is a closed CTNNB1 Syndrome Facebook page for parents only, so some discussions may be better to post there.

 

Of course, we always appreciate financial contributions to support our mission. However, there are other ways that you can help too!  We are currently looking for:

  • Translators (English to your native language?) for the website.

  • Social Media Supporters

  • Fundraisers

  • Researchers

  • Meetup Organizers

  • Bug-Squashers (let us know if there are issues with the website!)

We are actively seeking support from corporate sponsors.  Ask your company if they would be willing to support us!

Donations to CTNNB1.org are now tax-deductible in the US, as we have been granted 501(c)(3) non-profit status.  Please consider donating today!