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Resources

We are working on developing a full suite of information about CTNNB1 Syndrome.  Want a quick FAQ on CTNNB1 Syndrome?  Download it below!

The first two facebook link requires acceptance to closed facebook groups. The first is for parents only and the second is for extended family members.  

Site © 2017-2020 by CTNNB1 Syndrome Awareness Worldwide (CSAW).  The information contained in this site should not be construed as a substitute for personal medical advice. Please consult with a qualified clinician in all matters relating to genetic diagnosis, management and health. 

 

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