CTNNB1 Syndrome Forums

This is your place to ask questions and get involved! Please remember that this forum is public!

Family Forum

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Have someone in your family with CTNNB1 Syndrome? Get answers to your questions here!

Grandparents' Corner

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A special place for grandparents of children with CTNNB1 to communicate with each other and ask questions!

Provider Forum

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Are you on a care team for someone with CTNNB1 Syndrome? Ask your questions here!

New Posts
  • sweethrt758
    Dec 07, 2020
    Provider wanting more info
    Discussion 
    Hey everyone, I would love any input about this dx. I work as an OT in pediatrics and because this is so rare, I'm hoping to gain insight from all of the families. I'm trying to learn about the prognosis for children. Thank you so much in advance!

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