Site © 2017 par Anthony W. Rose (anthony.rose@ctnnb1.org) pour la sensibilisation mondiale au syndrome du CTNNB1. L’information présente sur ce site ne se substitue pas à un conseil médical personnalisé. Veuillez consulter un clinicien qualifié pour toutes questions concernant le diagnostic génétique, la gestion de la maladie et
la santé.

Meet ADDISON

Addison is a precocious five-year-old who loves Daniel Tiger, Paw Patrol, and Peppa Pig. She is ambulatory and uses only shoe inserts to help with balance. She has learned to jump, run and gallop and is starting to read.  She rides the bus to a public preschool five days a week and attends occupational therapy and speech therapy once a week. She uses eyeglasses to help with vision issues. (Updated 1/19)