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    Meet the Garza Family
    Annie Wood
    • Mar 22, 2021

    Meet the Garza Family

    The Garza Family Anita, Luis, Nico, and Mia Folsom, California, USA Mia was my second child, and she was born when her brother was only...
    182 views0 comments
    Meet the Anttila Family
    Annie Wood
    • Mar 5, 2021

    Meet the Anttila Family

    Westynn was our first miracle baby born on January 9th 2016 after years of praying and fertility medication. (Her sister Harrow entered...
    160 views0 comments
    Meet the Benson Family
    Annie Wood
    • Feb 26, 2021

    Meet the Benson Family

    Oliver Benson is almost 4 years old, and he is a very determined and happy little boy! Oliver was diagnosed with microcephaly, mild...
    221 views0 comments
    Meet the Anderson Family
    Annie Wood
    • Feb 19, 2021

    Meet the Anderson Family

    Lillian Alo Anderson was born November 17th, 2017. At her birth, she was notably petite with crossed eyes. One of the delivery nurses...
    189 views0 comments
    Meet the Bradley Family
    Annie Wood
    • Feb 12, 2021

    Meet the Bradley Family

    Alyssa is a 17 yr. old kind, loving girl. She has a brother Jake (22) and a sister Emma (19). Alyssa and her family lives in Holly...
    206 views0 comments
    Meet the Murphy Family
    Annie Wood
    • Feb 5, 2021

    Meet the Murphy Family

    Addison is an energetic, fun loving 5 year old. She loves to play doctor with all her baby dolls. At about 6-12 months old, my aunt Kay...
    224 views0 comments
    Meet the Bushman Family
    Annie Wood
    • Jan 29, 2021

    Meet the Bushman Family

    Eliza is a spunky, mischievous almost 3 year old who loves Daniel Tiger, pretzels, and teasing everyone she meets. She is the youngest of...
    302 views0 comments
    Meet The Johnston Family
    Annie Wood
    • Jan 22, 2021

    Meet The Johnston Family

    Our little Naomi Elise Johnston, was born on January 25,2018. She came to this world a little smaller (4lbs 3oz) but that hasn’t stopped...
    259 views0 comments
    Meet the Naugles
    Annie Wood
    • Jan 15, 2021

    Meet the Naugles

    Caleb is a sweet boy who was officially diagnosed with CTNNB1 syndrome in 2018 by the genetics team at UPMC Children’s Hospital of...
    273 views0 comments
    Annie Wood
    • Jan 11, 2021

    Inclusion

    Inclusion. Webster’s dictionary defines it as: 1: the act of including : the state of being included 2: something that is included: such...
    113 views1 comment
    Virtual Parent Libraries
    Annie Wood
    • Oct 26, 2020

    Virtual Parent Libraries

    Often as parents we turn to books and podcast to learn and connect with others walking a similar life path. Have you read a good book...
    121 views1 comment
    Organizing your child's IEP binder
    Annie Wood
    • Oct 9, 2020

    Organizing your child's IEP binder

    Today I want to share a useful resource with you- understood.org. This is such an amazing website, they provide so much helpful...
    164 views0 comments
    Welcome to the Parents Place!
    Annie Wood
    • Oct 1, 2020

    Welcome to the Parents Place!

    Hello CTNNB1 families. Welcome to the Parents Place. I hope this soon becomes your go-to place to find resources, connection, and...
    216 views3 comments
    awrosemba
    • Sep 26, 2020

    Coming Soon! Parents Place

    Parents Place - The usual challenges of parenting are compounded for parents and primary caregivers of children with needs that are...
    36 views1 comment
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    The first two facebook link requires acceptance to closed facebook groups. The first is for parents only and the second is for extended family members.  

    Site © 2017-2020 by CTNNB1 Syndrome Awareness Worldwide (CSAW).  The information contained in this site should not be construed as a substitute for personal medical advice. Please consult with a qualified clinician in all matters relating to genetic diagnosis, management and health.