CTNNB1.org

The Garza Family Anita, Luis, Nico, and Mia Folsom, California, USA Mia was my second child, and she was born when her brother was only...

Westynn was our first miracle baby born on January 9th 2016 after years of praying and fertility medication. (Her sister Harrow entered...

Oliver Benson is almost 4 years old, and he is a very determined and happy little boy! Oliver was diagnosed with microcephaly, mild...

Lillian Alo Anderson was born November 17th, 2017. At her birth, she was notably petite with crossed eyes. One of the delivery nurses...

Alyssa is a 17 yr. old kind, loving girl. She has a brother Jake (22) and a sister Emma (19). Alyssa and her family lives in Holly...

Addison is an energetic, fun loving 5 year old. She loves to play doctor with all her baby dolls. At about 6-12 months old, my aunt Kay...

Eliza is a spunky, mischievous almost 3 year old who loves Daniel Tiger, pretzels, and teasing everyone she meets. She is the youngest of...

Our little Naomi Elise Johnston, was born on January 25,2018. She came to this world a little smaller (4lbs 3oz) but that hasn’t stopped...

Caleb is a sweet boy who was officially diagnosed with CTNNB1 syndrome in 2018 by the genetics team at UPMC Children’s Hospital of...

Inclusion. Webster’s dictionary defines it as: 1: the act of including : the state of being included 2: something that is included: such...

Often as parents we turn to books and podcast to learn and connect with others walking a similar life path. Have you read a good book...

Today I want to share a useful resource with you- understood.org. This is such an amazing website, they provide so much helpful...

Hello CTNNB1 families. Welcome to the Parents Place. I hope this soon becomes your go-to place to find resources, connection, and...

Parents Place - The usual challenges of parenting are compounded for parents and primary caregivers of children with needs that are...