Tickets for adults or children over 2 years old for the Midwest US Meetup at Newport Aquarium on July 22, 2019.  Tickets includes Pizza, Lemonade, and admission to the Aquarium.  Each paid ticket also earns you an entry into the door-prize giveaway(s).  We will be raffling off T-shirts and other items as well as a tricycle, so please list T-shirt sizes for any  paid members of your party, as well.  Please choose the total number of paid tickets you need.

Ticket for 2019 Midwest US Meetup (Adults and children over 2 years old)

  • Unfortunately, we can't accept returns on tickets purchased.

The first facebook link requires acceptance to the family facebook page.  

Site © 2017-2020 by CTNNB1 Syndrome Awareness Worldwide (CSAW).  The information contained in this site should not be construed as a substitute for personal medical advice. Please consult with a qualified clinician in all matters relating to genetic diagnosis, management and health.