Site © 2017-2019 by CTNNB1 Syndrome Awareness Worldwide (CSAW).  The information contained in this site should not be construed as a substitute for personal medical advice. Please consult with a qualified clinician in all matters relating to genetic diagnosis, management and health. 

 

MEET ADDISON

Addison is a vivacious 3 1/2 year old who loves Paw Patrol, Doc McStuffins and Zou. She is ambulatory and uses only shoe inserts to help with balance. She likes to sing, and also regales her parents with stories about a character named "Sweet", a 'big girl' who cooks in the kitchen and has random adventures as well as "Thomas" the light pole that is friends with all of the trees. She rides the bus to a public preschool four days a week, and attends physical therapy (to increase core strength) and speech therapy (to work on articulation) once a week. She uses eyeglasses (and more recently an eye patch) to help with vision issues.

 

Deze pagina is binnenkort beschikbaar in het Nederlands